Rylee's test really began on Thursday evening because we had to keep her up three hours after her normal bed time. So, she and Daddy went and got an ice cream cone and some fun things at the store. To top off having to keep her up three hours late, we then had to wake her up three hours earlier than normal. She and I spent the morning watching cartoons, playing games, reading books, and mostly trying to stay awake. We then headed to the hospital to get Rylee's hearing test done.
The first thing the nurses did was just get Rylee's IV going, because she was fearing it so they just did it to get it over with. Then we went to the procedure room to start running the test and sedate her. Once she was sedated the audiologist hooked Rylee up with the testing machine and began the test. The test lasted roughly 2 1/2 hours and then she was moved into recovery to wait for her to wake up and then we could go home.
Once the test was done, here is what we learned from it:
She has normal hearing with High Pitches, but is on the border of normal and moderate loss at 30 dB. Normal hearing is anywhere between 0-30dB.
She has moderate hearing loss at mid-range pitches, a 40-60 dB loss.
She has a severe hearing loss at low-pitches, an 80 dB loss.
- The catch to this is that having tubes can also affect a child's ability to hear low-pitches, so the true hearing loss at low pitches is still unknown.
The plan of attack:
The Audiologist has asked us to bring her back for a sound booth hearing test so that she can compare the results of the ABR from today with the sound booth test she will be doing. Once she compares them she will decide when to order a second ABR test. She wants to continue to have do tests to monitor the hearing with the tubes as her ear adjust to the tubes to see if there is change in the hearing.
Our EN&T will now start to look for the causation of the hearing loss, since the Audiologist has narrowed down where the hearing loss is coming from. The EN&T will most likely order a MRI and/or CT Scan to look at the structure of the ear to see where the problem is coming from.
The possible outcomes:
Tubes fall out next year, hearing improves (unlikely, but possible)
The MRI shows damage to the structure of the ear that can be surgically fixed, and this will help improve and fix the hearing.
The results remain consistent and she will get fitted for hearing aids and be monitored routinely by the Audiology team at Primary's.
The type of hearing loss she was diagnosed with is conductive hearing loss.
Just after getting her IV
Feeling better and making funny faces at me
Ready to start the test
Trying to wake up in recovery
3 comments:
Oh, are you serious?! I hope the she's ok and and further testing goes well. Poor thing. Seriously, i hope it all turns out ok. :)
And just wanted to say that Nolans face in reaction to how bubbles taste...is priceless. Love it! :)
Ry Ry we miss you and hope you don't need any more IV's... they are no fun! Keep us updated!
Aw, what a sweet girl! Our little guy has a conductive loss in the low frequencies and a sensorineural loss in the high frequencies. We did have to go the hearing aid route, but the hearing aids have helped immensely!
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